In The News!Exciting News for lupus patients! The Lupus Foundation of Northern California is committed to helping lupus patients and to that end we are excited to share some exciting news about a breakthrough treatment to help manage lupus with AMPEL Biosolutions! We will be scheduling a future patient zoom meeting to hear more about this from AMPEL and give lupus patients a chance to ask questions directly. The Breakthrough Discovery: AMPEL BioSolutions announces a breakthrough in personalized precision medicine that will revolutionize the way doctors manage the autoimmune disease Lupus. Revealed in the peer-reviewed journal Genome Medicine and being made available to patients through a US follow-on study, the LuGENE® blood test forecasts patient flares and drug targets from gene expression utilizing predictive explainable AI. Why it Matters: Physicians rely on a “trial-an-error” approach for Lupus disease management with more than 95% of patients experiencing organ-damaging and often life-threatening flares every year. Currently, there is no way to predict flares or determine which treatment is most appropriate for each patient, and in many instances it can take many years for some patients to find the most effective one to manage their disease. Read all about it here! PATIENT SUPPORT PROGRAMSUpcoming Lupus Health Conferences We have 2 Lupus Health Conferences scheduled for Spring!
As always these conferences are free to lupus patients and those who love them! Sign up today! 9th Annual Purple Ribbon Awards Thank you to everyone who attended our 9th Annual Purple Ribbon Awards! We had an amazing turnout and such wonderful support from everyone! This year was our largest event in YEARS and it showed in the amount we raised! We blew away our STRETCH GOAL and raised over $100,000, and more is still coming in!!! We returned to work eager to begin planning our Support Group Leader Training and sending a lupus patient to the National Lupus Advocacy Summit in Washington D.C in May! We are also excited to start looking into some new programs to offer lupus patients. Speaking of lupus patients! We truly appreciate all of the lupus patients who joined us as Honoree’s, Guest Speakers, and as guests! We are also incredibly thankful for our Sponsors, our Title Sponsor, Kyverna and our Purple Ribbon Sponsors, Amgen and Aurinia. Between them we were able to invite 24 lupus patients, at no cost to them!! Thank you to all of our sponsors who are listed on the sign in the photo If you wanted to donate but you forgot, don’t worry, you can still donate! Just click HERE. You can also check out the photographs from the evening on our website. LUPUS PATIENT SURVEY As a small non-profit we receive funding in many different ways, including direct donations, grants and sponsorships. Most of our sponsors and the grants we complete want detailed information on the numbers of patients we help each year as well as other information. In order to give the most accurate information we have posted a lupus survey on our website. This survey is anonymous. Not only will it help us as we complete grants and sponsorship requests, it will also help us to plan and design new programs to support lupus patients and their family members in the future. Please take a few minutes to take the survey and feel free to forward it to the other lupus patients you may know! THANK YOU!
We have a few other exciting things in the works so be sure to follow our social media at:
https://www.facebook.com/LupusOnline/ https://www.instagram.com/ https://twitter.com/LFNC
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